Regular readers, friends, and family know that I have struggled with chronic illness since I was in my early teens. Certainly, I am at a point in my life where my history with being sick and my current health doesn’t rule my life as it once did. Generally, I think I live a pretty normal life, perhaps with just a few more bumps in the road than a generally healthy person would face.
That said, I am still knocked over sometimes in realizing the difference it makes in one’s life to have been or be chronically ill. It gives you a new lens with which to see the world – in both a not-so-good way but also in some more positive ways. I realize that no matter how much better I get, I will bring that lens with me.
I was just reading the blog Journey to Somewhere which is written by a lovely woman about my age, who goes by the pen name Penguini, and who is in the congregation where I am the intern minister. I wanted to point it out because I am impressed with her ability to capture life as “a sick person” through her writing. I think for ministers, friends, or family who want to be there for someone who is struggling with chronic illness (or who has come through a chronic illness), Journey Toward Somewhere can be a helpful resource.
Journey to Somewhere also pointed to But You Don’t Look Sick, an online magazine “about living life to the fullest with any disability, invisible disease, or chronic pain.” In particular, Penguini pointed to an article on But You Don’t Look Sick called The Spoon Theory that I think deals well with helping friends and family better understand the day-to-day reality of chronic illness. Among other things, there is an article, 10 Tips for Visiting Someone Who is Sick, and there are also book reviews, and even a section called “sick humor” which is, of course, always important when facing illness. :)
Thanks to Penguini for her blog, writing, and, in general, her wonderful self. May all of those out there who are facing illness find healing, strength, and hope.
If you know of other good resources, please feel free to list them in the comments.