March 6, 2012
Somehow, I was made aware of Kyle, a little boy who needs a bone marrow transplant to save his life. Against my better judgement, I (ironically) clicked “like” of his facebook page. He is not much older than my son, so maybe that is why it makes it particularly compelling for me. And for weeks, in my mundane little facebook feed, I’ve been reminded of the bone marrow drives that his family is holding in order to save their son’s life. I mean, when you have a sick child, I cannot imagine also being forced to be upbeat and convincing to try to entice people to be tested to see if they are a bone marrow match. It is excruciating just to think about.
Here is what his website says: Kyle is a sweet four year old boy who loves fish and whales. He also has aplastic anemia and needs a bone marrow transplant as soon as possible to save his life. Right now, every day counts. Kyle is half Asian and half Caucasian, so finding his life-saving match is difficult. With the odds we have to work with, we need to reach about 40 million people in hopes of finding that match. You are key to helping us do this.
This has led to two things for me. First, I’ve put my DNA in the National Bone Marrow registry. You can do so too, here. I will not be a match for Kyle, but I know that there are many more Kyle’s out there so maybe I can be a match for someone else.
Second, I am sharing Kyle’s story here (facebook page is here). I can barely even look at his webpage without breaking down into tears for him and for his parents. I cannot imagine being in such a position.
I hope you’ll consider sharing Kyle’s story and joining the National Bone Marrow Registry.
It feels like so amazingly little to do in the face of something so profound, but I suppose we do what we can do and then just pray and hope.
July 17, 2008
Oh, Jordan, Angela, Rayanne, and Ricki, If only you had lasted more than 19 episodes. But with each sweet episode, all of us other 14-year-olds ached with you. You are not forgotten. Amen.
On another note, this website also sold a shirt with the phrase, “If you got a problem, Yo, I’ll solve it.” I wanted to order that but $22 is A LOT for a t-shirt and of course Jordan took precedence. I was just entertaining my family the other day by downloading 90s songs from itunes and singing along every word, along with some very 90s dance moves. Oh, yes, I know every single word to Ice Ice Baby, Baby Got Back, Nuthin But A ‘G’ Thang, Funky Cold Medina and so on. A few beats and I am back at the skating rink. Oh, those were the days.
August 14, 2007
So I am doing some research about how foundations can set up a system where letters of inquiries, proposals, and such can be submitted online. In my search I turned up this great article from 1997 – only 10 years ago. It is titled: “Why the W.M. Keck Foundation Went Online.” It is a whole article about the cutting edge decision of this foundation to – yes, that’s right – develop a web page. The question at the heart of the article is: What motivates a Foundation to venture out onto the Internet?” and we are told that “her candid responses offer a rare, behind-the-scenes glimpse of how this respected foundation established itself on the World Wide Web.” This was only ten years ago. Could you imagine having such a conversation today?
In a week when I had a computer crash and our internet stopped working at the same time, and I am highly annoyed that my adobe acrobat isn’t working and that Mcafee won’t install correctly, it is amazing to see how much technology is a part of our lives (and how #*%@(#& difficult it is to fix stupid little things on a measly little computer) and how fast it has happened. I know. Not some sort of rare revelation, but I found the article amusing and food for thought.
I can’t believe how disruptive it is when my computer isn’t working well and web pages load too slowly (for some unexplained reason).
I need to go to the beach.
April 12, 2007
This shouldn’t be funny. But it is in a weird sort of way. Somehow I get Ladies Home Journal (that’s not the funny thing). I don’t pay for it, it just started showing up one day. Of course LHJ isn’t quite my style, so I just throw them in the “Goodwill” bag and I donate them. I can’t stand to throw away a magazine someone else might read. But anyway. The funny thing is that the May 2007 issue which just arrived today has at the top “Special Love Your Life Issue”. Yet. Yet, some of the other headlines on the front cover include “The Best Low-Fat Ice Creams,” “The Most Important Insurance You Don’t Have,” “Sensational Summer Skin: The Safe, Natural Way,” “Win a Free Stress Makeover” and “Deadly Superbugs: How to Spot and Stop Them.” I guess love your life except for fatty foods (because, really, you know you are too big)… love your life except in that you don’t have the right sort of insurance… love your life except that you could easily be killed by a deadly superbug and your skin isn’t good enough AND you need a “stress makeover” whatever the hell that is. Thank you LHJ.
February 28, 2007
A great way to avoid doing more pressing work.
Austria – Germany – Luxembourg – Austria – Ireland – Spain – Greece – Belgium – Liechtenstein – Italy – Netherlands – Belgium – Switzerland – Vatican City – Czech Republic
I only included states that I could actually remember being in. I think I have been through Georgia and Maryland, but I figure if I can’t remember when, it doesn’t count.
We have a world map in our office with little pins in it where we have been so I thought this was fun. W. of course beats me having been to China, Taiwan, etc. I didn’t count countries where I only landed in the airport. I wish it showed boarders and names of the country on the map. You can do it here http://www.world66.com/myworld66
I wanted to add Nicaragua and Costa Rica, but they didn’t have a Latin American map.
Gosh, I feel like I would be such a good professional traveler.
February 28, 2007
This makes me so happy. It is 41 now and it feels so nice out. Well, at least nicer. I still have a hard time saying “nice” and “48 degrees” in one sentence. When we first moved to Boston, I would have been ready to start putting my winter clothes away – March is almost here, right? Spring should be here soon!
But I have learned to appreciate the non-miserable weather, love the sun, but not get my hopes up. Because it can always blizzard in May here. Like it did our second year leaving here.
But guess how hot it will be in Nicaragua March 22-31 when I am there? Hot! Whoo-hoo! When I lived there, it took me several weeks to get used to sweating all the time. Like dripping, wet, yucky sweating. That is just how it is. All the time, pretty much. But I did get used to it and I would always prefer that to coldness.
Just my thoughts on the weather today. Because I know you wanted to know.
And I will be blogging live from Nicaragua while I am there. I’m so looking forward to it! I just hope my friends and family aren’t completely shocked when they realize I have forgotten Spanish. Aye! I need to find a tutor fast.
May 21, 2006
Does anyone know a good article or book (or several) that explains why U.S. Americans are so religious/Christian (for instance, as compared to Europe which is so secular)? I’m sure I could find some, but I’m wondering if there are ones people know of that are actually good or accepted as pretty on-target. I know, I know. I’m in divinity school and should know this. But I don’t.
April 5, 2006
But now that the BBC site is back up we find that the bird flu has been found in German poultry. Not long before it is here in the old USA. How are you preparing for the bird flu? It is always good to have 14 days worth of food and water in your house anyway. If (or perhaps I should say when) the bird flu becomes the human flu, it appears that most people believe that they should not go out. Including to work. Which might be a reasonable thing to think. You won’t find me out and about when the chance of contracting this thing seems to be even a little likely. However, I work at a church and not for the just-in-time system that gets groceries to our store, gas to the gas stations, and all that sort of stuff. But, studies show that many who DO work in these sorts of very important jobs might find it best not to go to work either. And this will mean a serious disruption in our just-in-time system. So even if you would LIKE to go out and get groceries and refuse to be scared into staying in your house (akin to people who refuse to leave their homes even if a hurricane appears to be coming) it may not matter because there may not be food on the shelves. So stock up on those yummy canned foods, pastas, and, my favorite, those thai lemongrass chili soups that you just have to add hot water too. And get some jugs of water too. It can’t hurt and then you won’t have to borrow food from my stockpile.
Read the article about the bird flu coming to Germany here: http://news.bbc.co.uk/2/hi/europe/4879480.stm
p.s. Call me crazy, but with mad cow and the bird flu, it seems like we could solve a lot of problems by not mass-farming animals, ehh? Just an idea. But that is another post.
March 28, 2006
Really, I have to stop myself from posting many times a day. Give someone an audience (even if it is only my supervising minister and my mom to this point) and she goes wild. But, I just visited kblog and her description is below. I just thought it was such a nice descirption that I thought it would share it. I espeically liked the part about cats. Oh, you ask about why I like the part about cats? Give me time, and you will get to meet my four sweeties who teach me wonderful things each day, mostly, how important cuddling is. Along with taking naps. And the importance of just being. But I’ll stop on the cats for now. Here is the blog description I liked so well.
This is a blog about trying to live out the best of intentions and live up to the greatest of hopes even when intentions are not enough and hope is in too short supply. Aspirations, inspiration, politics, principles, philosophy, religion, sprituality, culture, kids and cats and anything else that is or may become important to me.
March 28, 2006
Just a note that if you are just joining Elizabeth’s Little Blog you can scroll down to the first two posts for directions on posting comments and for the introduction.
Just saw this article in The New York Times “Bush Was Set on Path to War, British Memo Says.” I thought of several sarcastic comments that I could say to follow this ever-so-revelatory article, but I’ll simple leave the link for folks to visit if you are so inclined and you can draw your own conclusions.
Also found this blog today by a UU minister that explores sexuality and religion as the main topic of the blog. Reminds me that I hope to do more posting on indecent theology (the topic of a sermon which went over well at FUUSM a month or so ago).
In the meantime, enjoy the lovely almost-spring weather.